An Emergency I Made It

An Emergency

lilliancooks 15 years ago

I won't be around much for a while! My Mom was rushed to the ER today with seizures. She seems to be stable but they admitted her and we're not sure how long she'll be there. So all my time will be spent at her bedside til she goes home....and then some!

Please keep the group going while I'm gone...you know, chat it up!

Thanks! =)

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lobster 15 years ago said:

Hey Lillian, so sorry to hear that, hope all goes well and it is nothing serious, thoughts and prayers for you, your Mom and family, take care sweetie!!

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lovebreezy 15 years ago said:

Mom's are so important. I wish your's the best.

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wynnebaer 15 years ago said:

My prayers are with you and your family.

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keni 15 years ago said:

oh no, Lillian.... do what you gotta do...

we'll be here

thinking of you and your family *hugs*

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pleclare 15 years ago said:

Lillian,so sorry to hear about Mom. Saying prayers that everything will be alright. Keep us posted.

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valinkenmore 15 years ago said:

Lillian - prayers for both you and your Mom. May she have a speedy and total recovery.

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frankieanne 15 years ago said:

Sending good thoughts your way, Lillian, and to your mother. Take care of yourself, too! I hope your mom is better soon.

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laurieg 15 years ago said:

Sending good thoughts your way!

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mommyluvs2cook 15 years ago said:

Oh Lillian! Take as long as you need! Hope all goes well and I'll be thinking of you!

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lilliancooks 15 years ago said:

My Mom is doing SO MUCH better! I thought we were going to lose her 5 days ago! She was having lots of seizures and she also had a 102 degree fever...which the Drs. don't know where it came from. We are not happy with the hospital she's at right now (its a General Hospital), so today we're moving her to a cutting edge Neuro Hospital. We think her seizures are under control. She seems alert and back to normal. Two good things that came out of all of this is the fact that after her last grand mal seizure, Sunday morning, her hearing was restored to what it was BEFORE her brain tumor!!! And so is her appetite!!! Its a miracle!!!

Thank you soooo much everyone, for all the kind words and prayers!

I can't wait to get back to normal...lots of stress and worry right now! We'll see what the new hospital says.

I hope to be back on here soon! I'll have to read about what you have all been making when I get more time!

(((HUGS)))

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pleclare 15 years ago said:

So glad things are better Lillian. Hope she continues to improve. She is in my prayers!

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frankieanne 15 years ago said:

That's very good news, Lillian! I hope she continues to get better.

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lilliancooks 15 years ago said:

We got some very bad news from the new hospital...they did an MRI which showed that my Moms tumor is back! It must have grown very quickly because it wasn't there a month ago! She is home now and we are all taking turns staying by her side because she must be watched constantly. Me and my sister are bringing her for more tests on Thursday and we'll be talking to her Neuro Oncologist. We have LOTS of questions for him.

Thank you so much everyone! Your prayers and well wishes are very comforting!

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pleclare 15 years ago said:

So sorry to hear that Lillian. will say a prayer that they can take care of the problems.

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lovebreezy 15 years ago said:

I just hate cancer. Let's shoo it away. My best thoughts for you.

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frankieanne 15 years ago said:

I 'm sorry to hear that, Lillian. Sending good thoughts your way.

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lobster 15 years ago said:

Oh Lillian, so sorry that it is not better news!! I hope there is something that can be done quickly to get it under control! Hang in there one day at a time and kick butt!! Take care Sweetie!! Thoughts and prayers your way!!

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lilliancooks 15 years ago said:

What a roller coaster ride its been lately! The Neuro Oncologist thinks its not the tumor growing back! He seems to think its just scar tissue thats forming around the biopsy site! I hope he's correct! He wants to do a PET scan Monday...so we'll see! The doctors have my Mom on extremely high doses of seizure medicine and its making her kind of loopy! I hope we'll be able to reduce that a little so that she can get back to normal. I guess we'll have to wait til we see the results of the PET scan first! But at least now we have some hope that she'll be okay! We should know more by Tuesday! Keeping my fingers crossed!

Thanks Pleclare, Lovebreezy, Frankieanne and Lobster! Yes...one day at a time!

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pleclare 15 years ago said:

I amsaying a prayer Lillian!

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mommyluvs2cook 15 years ago said:

Keeping my fingers crossed too!

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frankieanne 15 years ago said:

I hope things get better for all of you soon!

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karlyn255 15 years ago said:

how are things going. Is she ok? and you....how are you holding up?

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lobster 15 years ago said:

Hey Lillian, that does sound promising!! Hope it is nothing of consequence and just something simple and pesky that has to be dealt with! Still thinking of you and saying prayers that everything works out for the best! Take care and thanks for the update!

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otterpond 15 years ago said:

It sounds like God may have sent the biggest miracle. How wonderful it must be for your mother to have her hearing and appetite back. I hope she is celebrating that enormous gift. My heart goes out to you and your family Lillian.

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lilliancooks 15 years ago said:

Thanks everyone! I'm hanging in there...thank you Karlyn! =)

The PET scan yesterday showed no re-growth! We did a little happy dance after hearing the news! So it must be scar tissue that caused the seizures. We also decreased her seizure medicine a little last night because the dose was just too high! It was making her very tired and off balance. Today she seems a little more alert and walking better.

We will probably be bringing her back to Sloan soon, so that the doctors who treated her tumor can have a look at her.

I miss this place and everyone here! Thank you for the prayers...they're working! =)

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frankieanne 15 years ago said:

Well, Lillian, that is some good news! I hope she continues to get better. Take care!

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pleclare 15 years ago said:

Me too,Lillian!

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lilliancooks 15 years ago said:

This has not been a good year for us! Yesterday my 17 year old daughter had a grand mal seizure! The seizure was only half the problem...when she fell she smashed her mouth on her bedroom floor and knocked out her front tooth and cut her lips up really bad! They were able to put her tooth back in...and she has a retainer that they glued to her surrounding teeth thats holding her tooth in place til it re-attaches. It was her birthday yesterday! We thought she out grew her seizure disorder because she hasn't had one in 4 years! So this is very upsetting for us in so many ways! I wasn't even home when it happened because I was sleeping at my Mom's house...taking care of her! I was able to get to the hospital just as they were putting her tooth back in and stitching her lips. We have lots of different doctor appointments for the upcoming week.

Now my time on here is limited even more!

I hate to be such a downer...I hope to have some good news someday soon! I'm trying to keep positive but its not that easy these days! God is really knocking me around lately!

Thanks for listening everyone!

I'll try to pop in as much as I can! Keep cooking up a storm everyone!

(((HUGS)))

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pleclare 15 years ago said:

So sorry Lillian. Hope all works out for them both!

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frankieanne 15 years ago said:

Oh my gosh, Lillian. I am so, so sorry. I hope things get so much better for you soon.

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lobster 15 years ago said:

Oh Lillian!! So sorry, that just sucks!! Hope your daughter is fine soon, and she doesn't lose the tooth. Glad you were able to get there for her. Would the seizure have anything to do with all the stress that has been going on lately?? Good to hear that things are doing better for your Mom. Hopefully things will settle down soon back to normal. Hang in there, one day at a time!

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lilliancooks 15 years ago said:

Thank you everyone! Its been quiet here since friday...yay! I LOVE QUIET!

Yes, Lobster you are so right! Stress plays a big role in seizures! Lack of sleep seems to trigger it too! My 17 year old was a little nervous about school starting and also was missing me because I was with my Mom so much. She also has a nervous stomach which was keeping her up at night...so she wasn't sleeping too well the past few weeks. I know it could be much worse...some children have much more frequent seizures. Both my kids have seizures. Its very strange, because seizures are not in our family background! We go as far back as great grandparents, on both sides!

I'm just glad she hasn't had anymore since thursday! Whats sad is that we've been weening her off her seizure medicine for the past year because we thought she out grew the seizures. Now we have to slowly put her back on the dose she was on last year...and we can't ween her off again for another 3 years!

Yes, one day at a time...and what ever will be, will be! This is what I have to keep telling myself to keep from loosing it!

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lilliancooks 15 years ago said:

I'm doing another little happy dance right now!

My Mom's doctor from Sloan called this afternoon. He said that her tumor has not returned! The seizures happen to people who had tumors! So we'll keep her on the seizure medicine and he wants to do MRI's every 2 months to keep an eye on things. we still have to be with her at all times.

Now we're just trying to figure a schedule where she'll sleepover my house and my sisters house a couple of nights each week, plus she can be in her own home, with an Aide, 3 days per week. It'll be nice having her in my home a few nights each week! I have lots of great recipes, from all my foodie friends, to try out on her! lol!

Thank you everyone for all your prayers...they worked! =)

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pointsevenout 15 years ago said:

Glad you found the eye of the storm. Keep rowing.

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frankieanne 15 years ago said:

That's great news, Lillian!

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pleclare 15 years ago said:

Happy to hear things are better.

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lilliancooks 15 years ago said:

I like your analogy Points! Thank you...I will! =)

Thank you Frankieanne and Pleclare!

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mommyluvs2cook 15 years ago said:

Yay! So happy for you and your mom! And it seems like your back here too, we missed you!

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crazycookinchick 15 years ago said:

You guys are awesome.... I happened upon your message here Lillian while looking for different and varied meals for my Mom and Gpa who I'm responsible for. They have a bunch of dietary limitations so cooking is well, creatively interesting at best.
I'm very glad however despite the bumpy road with all it's pot holes, twists and turns things are as best as can be expected for you and your fam.

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lilliancooks 15 years ago said:

Thank you Mommyluv! Yes, I'm able to get back here a little more because I'm home more now! My Mom will be staying at my house every Tues, Wed and 1/2 the day Thurs. I can't wait! It'll be so nice having her around!

Hi CCC...thank you so much! I thinks its wonderful that you're caring for your Mom and Grandpa! You don't see too much of that these days! My Mom said that growing up in Italy it was the norm for the family to take care of the elders. I hope all is going well for your Mom and Grandpa too!

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lobster 15 years ago said:

Hely Lillian, sounds like things are heading in a "settled" direction! Hope things do settle down a bit so you can come down from "red" alert to something more civilized like "yellow" alert!! Take it easy, one day at a time, and remember to breath once and awhile!! Hugs and kisses XXXXOOOOOO!!

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crazycookinchick 15 years ago said:

Funny you say that, they are my Italian side of the fam. Well unfortunately Gpa had to go to the hospital yesterday and he's there for we don't know how long. He's in kidney and heart failure and they don't know why. The man is 88, he's miserable because he focuses on all his friends, and my grandma's death. He's cheated death 3 times in the past 2/3 years. I don't have a good feeling this time. I think all his meds which are keeping him alive are also killing him.... Not so much you can do. I'd either like him to recover and maintain a good quality of life, or God is merciful and allows him a peaceful passing. I've stressed to the further away family that if they'd like to see him they better get in here sooner rather than later. I don't want to see any of them having regrets.
It sucks but it all is what it is. It's not a surprise, it's the circle of life!
On the plus side I recreated my Mom's hamburg pie. Took a bit of a cross between hamburg pie and that Puerto Rican Plantain casserole stuff (which is very excellent). It smells good! It's still bubbling away in there and making a HUGe mess.
Thanks Lillian you're very lovely. Let's Keep on Trucking along aye?

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lilliancooks 15 years ago said:

Awwww...Thank you Lobster! Yes, I do have to remember to breath! Sometimes it feels like I'm suffocating! Hugs and Kisses to you to! XOXOXO

I'm so sorry to hear about your Grandpa CCC! I totally agree about the meds...they fix one thing and damage another! But sometimes theres no other way but to take the meds! My father-in-law has had the same situation. He's only 77 and will be on kidney dialysis this year because of all the meds he's been on for the past 25 years! Your kidneys can only handle so much! I won't even take an aspirin unless I'm about to climb the walls from headache pain! Thankfully I rarely get headaches!

And I agree with you...its better to have a our loved ones pass peacefully than to stay around and suffer!

I hope God is listening to you. And I hope that your family members are listening and get there soon too!

Thank you CCC! You hang in there!

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